Going Home
What might happen when I go home?
Sepsis affects your whole body, so recovery involves your whole body. Many people have new physical, psychological and emotional symptoms during their recovery from sepsis. It is normal to go through this.
The body and mind need time to get better.
You or your family/whānau member may have been seriously unwell, and the body and mind need time to get better. You or your family/whānau member may experience the following physical symptoms upon returning home:
General to extreme weakness and fatigue
Breathlessness
General body aches or pains
Difficulty moving around or sleeping
Weight loss, lack of appetite, food not tasting the way it used to
Dry and itchy skin that may peel
Brittle nails and teeth
Brittle hair and hair loss
Dizziness and/or headaches
Change in vision
Dislike or intolerance for very bright, noisy, or crowded spaces
Sensitivity to temperature (feeling very cold or sweating)
Repeated infections
It is also not unusual to have the following feelings once home:
Mood swings – feeling “snappy”, irritable, angry or upset
A lack of confidence or self-belief
Not caring about your appearance
Wanting to be alone, avoiding friends and family
Flashbacks or bad memories
Confusing reality (not sure what is real and what isn’t)
Feeling anxious, more worried than usual
Poor concentration
Depressed, angry, unmotivated
Frustration at not being able to do everyday tasks
Guilt for the stress and worry everyone experienced, or that you survived
Feeling that nobody understands how you may be feeling
During your recovery you or your family/whānau member may experience some or all of the problems listed, while looking relatively well to the outside world. If it has been some time since you or your family/whānau member developed sepsis, people may expect you/them to be fully recovered. This can make people recovering from sepsis feel very alone and even start to doubt themselves, or wonder if they are imagining all these problems.
It is normal and common to experience physical, cognitive and psychological problems after any serious illness. Give it time and seek support as you need it – you are not alone in your recovery.
What can I do to help myself or my family/whānau member recover at home?
Set small, achievable goals for yourself each week, such as taking a bath, dressing yourself, or walking out to your letterbox.
Rest and rebuild your strength
Talk about how you are feeling to family and friends
Record your thoughts, struggles, and milestones in a journal
Learn about sepsis to understand what happened
Ask your family to fill in any gaps you may have in your memory about what happened to you
Eat a balanced diet
Exercise if you feel up to it
Make a list of questions to ask your doctors, nurses, or other healthcare professionals when you go for a follow up
When should I be concerned?
Speak to your GP if you are still experiencing the following problems more than a month after discharge from hospital:
Frequent anxiety or worries that interfere with your ability to face day-to-day life
Low mood or depression, impacting on motivation, your opinion of yourself, or your thoughts about the future
Continued poor sleep, ongoing nightmares or flashbacks
Change in behaviour
Difficulty doing previously ‘normal’ tasks, or looking after the home and family
Using drugs (prescription/ non-prescription/ recreational) or drinking a lot of alcohol.